All aboard as Milford Haven sight loss group take to the tracks: Milford Haven Macular Society Group

03/07/19

All aboard as Milford Haven sight loss group take to the tracks

It was a case of full steam ahead for the Milford Haven Macular Society Support Group this week after they were invited to take part in a Familiarisation Day organised by Transport for Wales.

Members of the group got onboard for the hour-long journey from Milford Haven to Carmarthen to test some of the assisted travel services available to people with sight loss and other disabilities when travelling on Transport for Wales’ trains.

The group was accompanied by Geraint Morgan, community affairs manager at Transport for Wales. Geraint recently visited the group at one of its monthly meetings to talk to its members about the support on offer to anyone using the train who has a visual impairment. He also invited the group to come and try it out for themselves.

The trip was one of many events taking place throughout the UK as part of Macular Week, which runs from 24-30 June. Now in its fifth year, Macular Week is organised by the Macular Society to raise awareness of macular disease. This year, the Society is highlighting the importance of research funding to find a cure.

Macular disease is the biggest cause of sight loss in the UK. Nearly 1.5 million people are currently affected and many more are at risk. The disease can have a devastating effect on people’s lives, leaving them unable to drive, read or see faces. Many people affected describe losing their sight as being similar to bereavement. There is still no cure and most types of the disease are not treatable. Age-related macular degeneration (AMD) is the most common form of macular disease, affecting more than 600,000 people, usually over the age of 50.

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Madeline Roberts, leader of the Milford Haven Macular Society Support Group, said: “When Geraint asked us if we’d like to see how the assisted travel service works, we thought it was a great idea.


“I travel by train a lot myself, but many of our group don’t use it regularly or haven’t travelled by rail for a long time. For some of them, it’s simply because they just haven’t felt confident enough to do it. But there’s so much help and assistance available if you need it and nothing is too much trouble for the staff.


“It was also great that we could do this during Macular Week and use the opportunity to raise awareness of macular disease and spread the word to as many people while we were out and about.”

Geraint Morgan, community affairs manager at Transport for Wales, said: “For many people with sight loss, public transport is an important means of being able to travel – for work, for leisure or meeting family and friends.  The objective of our assisted travel talks and familiarisation trips is to help raise awareness of the assistance that can be provided when travelling by train.”

He continued; “The familiarisation trips offer an opportunity for people to experience a journey by train with the aim of giving everybody the knowledge and confidence to travel again in the future.”

For more information about assisted travel services available from Transport for Wales, please visit: https://tfwrail.wales/accessible-travel/booking-assistance

The Milford Haven Macular Society Support Group meets on the first Thursday of the month, from 2-4pm, at Milford Haven Library & Information Centre, Cedar Court, Havens Head Business Park, Milford Haven SA73 3LS.

 

For more information about the group, please contact Adele Francis, Macular Society regional manager, on 01639 843236 / 07494 468007, or email adele.francis@macularsociety.org

For more information on macular disease, call the Macular Society on 0300 3030 111 or email help@macularsociety.org

 

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Contact Information

James Nicholas

Rheolwr Cyfathrebu/Communications Manager

Trafnidiaeth Cymru/Transport For Wales Rail Services

02920720697

james.nicholas@tfwrail.wales

Notes to editors

Notes to editors:

 

Every day, around 300 people are diagnosed with macular disease. It’s the biggest cause of sight loss in the UK. Macular disease is cruel and isolating. It steals your sight, your independence, and your ability to do the things you love.

It can affect people of any age – even children – but not enough is known about why, and there is still no cure. There is only one way to Beat Macular Disease for good. We must fund much more research now, until we find a cure, or find treatments that stop it in its tracks.

Together we can fund the research that will find the cure. Together we can make sure the next generation won’t have their sight, confidence, and love of life stolen from them by macular disease.

For more information on this press release, contact Andrew Gray, media and PR officer, Macular Society on 01264 326621 or andrew.gray@macularsociety.org

 

Transport for Wales’ Assisted Travel Service can be contacted on 03330 050 501.  It’s available from 8am to 8pm everyday, except Christmas Day.  The service can also be contacted by Next Generation Text - please call the Passenger Assist team via text relay service on 18001 03330 050 501.

Tickets, reservations (where available) and assistance can be arranged for travel regardless of the train operator.